07/27/2026
Grateful for everyone who chooses me to take their photos. It means more than you’ll ever understand!
Last night I couldn’t sleep… my mind was just absolutely all over the place.
Reflecting on how this life has truly changed everything. How it has changed the people around me. The things I do, and can’t do. The limitations it creates but also the unique doors it opens.
Then we start our day like this.
Fever that lingers, lethargic, full of boogers, high HR, oxygen needs, trying to sort out his IVIG he was supposed to have today.
It’s hard. 100% it’s the hardest thing I’ve had to do and it’s honestly opened my eyes so much.
I look back at who I was before, and now.
It’s easy to get caught up in wishing things went as planned. Being disappointed in yourself for not feeling like you’re doing enough; not having reached certain goals you set. But maybe slowing down is what we needed.
If I can do anything, I can do this. I can be a voice, an advocate, a friend, a mother. I can be kind and forgiving to myself, too.
You’re not alone. Our journeys may look different but if life has ever thrown a curve ball at you like this one…. You know. It’s a rollercoaster ride that’s for sure but it’s one i don’t think I’d trade for anything, even on the hardest of days. Even days like today; there is still a lot I am grateful for.
We appreciate life in a way like no other. Especially appreciate the people who show up and cheer us on, even from a distance. You guys keep us going. 💜