19/08/2024
An entire day. This is the theme of this year’s world photography day.
The truth is, I cannot look at an entire day. At least not yet. For now, I cling onto moments, snippets of calm or semi normalcy, in a sea of hyper vigilance, chaos and constant planning that make up our days.
There is grief for something we never knew, as I watch friends, family and strangers alike traveling, and going on about regular activities, together as a family.
Living with invisible disabilities means being often misunderstood. Judged. Lonely.
It means filling pill boxes and checking scripts instead of filling school bags and checking sport equipment.
So I cling onto those snapshots. The sweet coffee date with his dad, tinted with the pinch in my heart I felt when the big one refused to leave the house that day. Again.
And so we hope, we shift, we accommodate, and we take it one moment at a time.
