11/01/2026
On August 17th of this year, my life was forever changed when I was diagnosed with Intracranial Hypertension.
Intracranial Hypertension (IH) is an EXTREMELY RARE neurological disorder occurring in only 1 out of every 100K people in the world. That's 0.001% of the population. It is caused by an abnormal buildup of cerebrospinal fluid (CSF), resulting in increased pressure around the brain.
The pain/pressure is FAR worse than a regular headache or migraine. The best way to describe it is to liken it to a boa constrictor snake that is constantly wrapped around your brain and eyes and NEVER, not even for one second, stops applying pressure. Increased pressure can lead to swollen optic nerves and vision loss, including blindness.
24/7 headaches, swollen optic nerves, tinnitus, orthostatic hypotension, dizziness, lightheadedness, falls, fainting, CSF (brain fluid) leakage, frequent hospitalizations, and medications that cause horrible side effects are just a small part of what we deal with EVERY single day.
Though IH is INCURABLE, some patients can go into remission with time and proper treatment and management of symptoms. My medical team has assured me that remission is a "high probability" FOR ME, but "the road ahead will be long and bumpy, with a few hurdles."
So, in the coming months, you may notice me posting less new photography, turning down opportunities, or participating in fewer exhibitions, if you haven't noticed already.
Right now, my main focus is getting through whatever symptoms I'm experiencing each day and working my way towards remission.
