01/10/2024
This family is one of the sweetest families I have ever met and I’m so grateful I was able to photograph them, twice in one year! They are funny, resilient, and so smart!
A little about the Nizar family:
Neena and her sons have a rare skeletal disorder called Jansens Metaphyseal Chondrodysplasia. Less than TEN people in the US have this disease and three of them are right here in Omaha, NE! Neena has devoted so much time into finding a cure for this disease, and she hopes to be the first to try an experimental treatment that could potentially help Jansen’s patients!
Attached below is the Facebook group for Jansen’s Disease, please go follow this page to keep up with what is next to come in all of this! Thank you to this wonderful family! You guys are AMAZING!
https://www.facebook.com/thejansensfoundation?mibextid=ZbWKwL