01/22/2026
Last week was a wild ride, and before time disconnects me with the awe of how much the Lord provided for us, I have to share..
Last weekend we suspected Drew was having short clusters of seizures. This landed us in the ER at OU Childrens after it happened 3 separate times—which was terrifying to say the least. After showing them multiple videos, they admitted us quickly and took great care of us. He tested positive for adenovirus which explained the fever he’d had the previous days. Because of some scary possibilities that these clusters could have been, they called in an EEG tech that Sunday night so that no time was wasted. And she felt like a literal *angel* who calmly talked us through all the things—just an absolutely breath of fresh air.
Over the 38 ish or so hour EEG, he did not have any episodes, *and* there were no significant findings OR background activity that would point to seizures or the syndrome we were worried about. This was all very reassuring! Our first praise! But if not seizures, what did we see??
This is where God answered prayers I didn’t even know to ask. We got home Tuesday (cue sweetest reunion ever with their big sibs), and on Wednesday morning I got a call from Children’s Neurology asking if Drew could make a 2:00 pm appt *that afternoon* (or wait until April). So, of course, we went. I don’t know what I expected, but when several doctors throughout our 3 days in the hospital couldn’t give us an exact diagnosis, I didn’t expect to walk away with one that day. BUT GOD!
We got the FIRST confident answer, and it completely made sense 😭🙏🏼 not febrile seizures, not the syndrome that we were specifically praying against but something he’ll grow out of called benign myoclonus of infancy that was triggered by him being sick.
What’s wild is when you google it, it specifically says that it’s important to distinguish it from the syndrome we were praying against. And y’all, He answered us. Clearly. And was kind enough to do it quickly. I am insanely thankful that we didn’t have to wait and wonder until April, because it was hard to wrap my mind around what we saw Drew do and what the results showed on the EEG. 🙌🏻
Cont 👇🏼
