07/29/2026
There are some families you photograph once.
And then there are families whose story you get to document as the years unfold.
Shelby and Brian have been one of those families for me.
Years ago, they trusted me to document the beginning of their marriage. Since then, I’ve had the privilege of documenting several more chapters of their lives together.
One of the greatest gifts this career has given me is the chance to watch families grow, and I’ve been incredibly fortunate to watch theirs.
If you’ve ever met Shelby and Brian, you know the kind of people they are. They’re kind, genuine, and deeply devoted to their family.
Recently, their story took a turn no one expected.
Their son, Felix, was diagnosed with COX20-related Complex IV Deficiency, an ultra-rare mitochondrial disease. As you saw in the carousel, fewer than 40 people in the world have been diagnosed with it, and today, there is still no cure.
Since his diagnosis, Shelby and Brian have done what loving parents do. They’ve learned a new language filled with specialists, therapy appointments, research studies, and medical terms they never imagined they’d need to understand. Every decision they make is centered around giving Felix every opportunity to walk, speak, learn, and thrive.
My hope is simple.
I hope more people learn what COX20 is.
I hope this reaches someone who can help.
I hope more families affected by rare diseases know they aren’t alone.
If you’d like to support Felix and his family directly, you’ll find that information in the carousel above, or you can visit supportnow.org/fixitforfelix.
Shelby and Brian have also shared two organizations doing incredible work to advance mitochondrial disease research. While those donations don’t go directly to Felix, they support the research that families like his are hoping will one day change the future.
And if you’re not in a position to donate, sharing Felix’s story is another meaningful way to help.
Thank you for taking the time to meet Felix 💚
