03/05/2026
On the 23rd May 2026 we are having a rainbow funday instore for a local family to help raise awareness of alternating hemiplegia of childhood (AHC) and funds for Rupert's Rainbow.
HOW?
We will be setting up a self serve rainbow portrait studio instore with rainbow backdrops and props.
Donate instore or on Rupert's Rainbow just giving page on the day mentioning Max Fun Day. to get access to our studio, have some fun and take photos of your children, friends, family, selfie photos with your mobile phones or cameras.
One free 8x6 Portrait print of your choice for each family/session.
*Minimum donation and also time allocation applies so we can fit everyone in.
WHY?
Rupert was diagnosed with AHC at only 7 months old. AHC is an extremely rare genetic disorder, affecting approximately 1 in 1 million children. It is often described by specialists as a “time bomb” due to its unpredictable and potentially life-threatening nature. It is characterised by unpredictable episodes of paralysis, seizures, abnormal movements, breathing difficulties, and developmental delay. AHC shares features with multiple neurological disorders, including stroke, cerebral palsy, epilepsy, Alzheimer’s, Parkinson’s, and autism.
Just a couple of months ago Rupert's amazing mummy had to give him CPR in our Tesco store when he suffered a life threatening seizure, before he was airlifted to Alder Hey Hospital. AHC episodes can be so sudden for him and progress fast.
There is currently no cure although there is teams in America progressing with treatment and hopefully that cure.
Rupert's Rainbow was set up by his family to raise awareness and fundraise to prepare for future treatment and help accelerate research that could lead to a cure.
So here's to a fun day filled with laughter and rainbows and helping this amazing family.
*click on pic to see details.
