11/11/2025
Blij dat ik deze foto's kon voorzien voor dit fantastische gezin! 📸🧑🧑🧒🧒
Hun zoontje heeft een zeldzame ziekte 'Homocystinurie' en via deze weg kan er hopelijk wat meer awareness komen en kunnen lotgenoten elkaar vinden... Dus lees gerust hun verhaal op onderstaande link! 😊
🍁✨ Meet our November , Alexander from Belgium! ✨🍁
When Alexander was diagnosed, his family was overwhelmed with unanswered questions — Why wasn’t HCU found through newborn screening? What will his future look like?
With time, and by hearing stories from others living full and joyful lives with HCU, hope slowly grew. Today, Alexander’s journey reminds us that there is so much room for improvement in newborn screening and that we must keep advocating for early diagnosis.
Read more about Alexander’s story ➡https://hcunetworkamerica.org/alexander/
LINK IN BIO