Support Baby Donovan and follow his Journey.

01/29/2023

Donovan is off lipids completely again. And went from 12 hours to 10 hours on TPN. He also just recently got a new Broviac line due to another infection. But this time it last a year. But this will be his 4th one since he was a baby. But he’s doing so great!!

09/29/2022

Waiting for them to take Donovan for his Sigmoidoscopy.. He’s all smiles this morning and has no idea what’s about to happened.

09/24/2022

08/11/2022

He is tearing up some peas mix with chicken and rice cereal. Doing so much better taking food by the mouth. He also off lipids Completely and went from 14 hours down to 12 hours on TPN. We are some happy parents right now. 

06/21/2022

Donovan’s nurse and I on our way to Omaha Nebraska for Donovan’s GI check-up. So thankful his nurse was able to fly with us. Our hands are full even for just a one night stay. With our carry on and his Medical bags.

06/08/2022

He’s just been doing so great.

05/12/2022

05/11/2022

04/17/2022

Happy Easter y’all 🐣

04/08/2022

After being held up in the hospital off and on most of his life since he was born. And always having to sit in his walker or chair all day without being able to move except for 4 hours out of the day. His only free time he has. Being on TPN for 20 hour’s everyday. He is finally walking. He was walking a bit at a outside event last weekend. But today he was all over the place. This really makes me so happy to see this. And crying happy tears. Really wish we could get his formula back and under control so we can get him back on track. He hasn’t had any formula in 2 weeks. And it’s really throwing him off track. And just another day longer he is on his TPN and lipids. He need to be able to have his formula so he can Continue to go up on his rate and drop down on TPN. This really sucks. Now that he’s walking. I really hate keeping him Locked up I feel like . 😢