05/08/2026
Makeup by : .pearlmoonbeauty
Sam is an amazingly beautiful person, inside & out, so I had her write something for me🤍
“My journey with EDS, MALS, SMAS, and LADA diabetes that last couple months in particular has been an adventureeeee, to say the least 🫡
Ehlers danlos syndrome (EDS) is a group of heritable connective tissue disorders affecting collagen structure, which impacts full body systems, such as—joints, skin, blood vessels, and more. While many people (up to 20%) may have benign hyper mobility, ehlers danlos is different, in that this hyper mobility is only a symptom of full body systemic manifestations of collagen dysfunction. While hypermobile EDS is not considered rare and researchers are not yet able to quantify its specific genetic underpinnings there are 12 other subtypes that are considered rare, and can be classified using clinical criteria, as well as genetic testing.
Common comorbidities with EDS depend on the subtype, but with hypermobile EDS, some comorbid conditions include MCAS (mast cell activation syndrome, or mast cell activation diseases—which are considered a rare disease) and POTS (postural orthostatic tachycardic syndrome). Additional issues that often coincide with EDS include tethered cord syndrome, median arcuate ligament syndrome, superior mesenteric artery syndrome, gastroparesis, autoimmune diseases, and complex pain and fatigue syndromes.
While ehlers danlos syndrome has no cure, having a diagnosis, as well as proper subtyping is critical for accessing appropriate care (ie getting to the appropriate specialists, such as cardiology, gastroenterology, PT, etc), as well as monitoring for EDS related complications throughout the lifespan. A diagnosis is also helpful for advancing the field and research.
For more information on ehlers danlos, some helpful Instagram accounts include—
”