10/12/2026
Yesterday, I went to a private screening of a documentary I had the wonderful opportunity to work on (in Phila, MD and DC) called, “The Highest Road.” It’s a story about the journey to have a drug approved to slow the progression of Friedreich’s Ataxia (FA), a rare, progressive neurodegenerative disorder that damages the spinal cord, peripheral nerves, and the cerebellum. To raise funds, bring awareness to this rare condition, and to unite FA communities fighting to be seen and heard around the world, champion and spokesperson for the FA Research Alliance (FARA) Kyle Bryant road his recumbent bike up the highest paved road in the world!!! What an amazing story!!! Huge shout out to the talented director and friend, Allan Thompson for bringing all the pieces together, and to Kyle Bryant who is simply, “A Hero of the World!” You Rock!!!