Neurofibromatosis (NF) can be a very cruel condition and no one can say what life holds for someone with NF, with me it caused Scoliosis, which required major surgery. An operation at The Manchester's Children's Hospital in March 2005 to place two titanium rods on ether side of my spine to correct my scoliosis came with risk. Eight hours into the operation the surgeon had to stop due to complicati
ons. My parents were called for, The surgeon told my parents he had never seen so many tumours on anyone's spine. I have been told I have at least one tumour on every nerve on my spine. I also have many internal tumours that have given me lots of other problems. I wear a back brace, knee braces and leg/foot braces on both feet due to the tumours on my spine causing foot drop in both feet. But even though I have NF I am not about to sit back and let NF take over my life. I have sat in hospital after hospital with my mum and seen doctor after doctor and not understood a word they have said, just sit back and think how many times have you come out of your doctor surgery not understanding what he/her has said? So I decided to write a book using words that young people can understand. My book is not all about gloom it tells of the good things that have happened to me, I even got to meet Prince Harry and Prince William and have tea with them. I hope by sharing my story with you it will help you to understand a little more about Neurofibromatosis and Scoliosis and that my book will answer some of your questions
