06/24/2022
June 23rd is HHT Awareness Day in Canada. I was very pleased to see that the St. John's Convention Centre recognized the day by changing their lights to blue and red this evening. Many members of my family, including myself, have this disorder, and it claimed my mother's life last year. It's good to see more recognition and awareness finally being made about this disorder as most people have little to no idea about it, even many family doctors.
Hereditary Hemorrhagic Telangiectasia (HHT) is a rare blood vessel disorder that can cause random and recurrent bleeds. The disorder is inherited, meaning it is passed down from parent to child. HHT patients can develop abnormal blood vessels in the face, lips, mouth, nostrils and hands, called telangiectasias. These lesions can bleed quite severely; in fact, nostril telangiectasias cause those infamous nose bleeds most patients experience. Those with HHT can also develop abnormal blood vessels in organs, called arteriovenous malformations (AVMs). These can occur in the lungs, brain, liver, gastro-intestinal tract and spine. The best defence against HHT is regular visits to an HHT centre of excellence for diagnostic screening, which allow a better understanding of how the disease is manifesting in you.
To learn more visit HHT Canada's website: http://hhtcanada.com/
An entire community of patients, their families, and friends benefit from increased HHT awareness and availability of care. Consider donating @ https://lnkd.in/dqAh4qu to help those affected by HHT all around Canada! HHT Canada THH