06/14/2017
Community.
I had the incredible opportunity to work with a family that is so full of love - love for one another and for their community. I wanted to do what I could to help Jacob and his family through their journey and to help bring awareness to Duchenne Muscular Dystrophy, a fatal genetic disease which I did not know much about at all. I thought to myself, "what can I do to support a family in our community?" I'm a story teller, so I thought that would be a good place to start.
I wanted to bring a face, a life, and a story to light and boy did I get that when I met 3 year old Jacob! I met up with Melissa, her son Jacob, and her daughter Avery at the soccer field to take some photos of him. When I first sat down to chat with Jacob, he wasn't too thrilled about the idea that he was being asked to change out of his really cool camouflage pants and into some awesome shark patterned shorts (I wasn't sure how to tell him both options were solid and that either way he would be looking pretty cool). He also was pretty into the idea of snacking on his yogurt tube, but maybe less into the idea of chatting with me. It wasn't a problem though, Melissa got him sorted and we took a little stroll further away from the 4 different soccer games that were occurring at the same time.
After Jacob had fuelled up on his yogurt tube he was game for anything - full of energy, life, curiosity and love. He was so much fun to work with! He was busy, happy, and so curious about what I was doing. Did I mention he was busy and so full of life? Jacob and I took turns snapping some photographs from my camera. He was so interested in what I was doing, that I wanted to give him a chance to see the world a little differently; he was doing that for me without even really knowing it. He got to take some really cool photos of trees around the field and his mom making silly faces at him. We had so many laughs while letting Jacob just be himself - a loving and happy 3 year old boy full of smiles. This was a really important and moving experience for me and I hope that you can feel the love and connection in these photos; they are as real, truthful, and authentic as they could be in that moment - meet Jacob.
So what is Duchenne Muscular Dystrophy and what can you do to support Jacob and his family? Jacob's mom Melissa let's us know.
"Duchenne Muscular Dystrophy (DMD), many of you, most of you, probably have no idea what it is. Myself, as a nurse didn't know what it was. I didn't know it is a fatal genetic disease with no treatment, no cure. That it slowly but surely would cause wasting of every single muscle in the body, including the heart and breathing muscles. That it causes a person to require a wheelchair by age 10 and death by 25 years. I never knew that I am a carrier of this disease. I never knew that I would pass it on to my son and that although I will never have symptoms, my sweet 3 year old son will. It will rob him of his mobility and his life.
What I also never knew was that despite how terrible this disease is, how amazing it could be. You see, ever since my son, Jacob was diagnosed at 9 months old, our family has literally been surrounded in love and support from friends, family and even complete strangers. It has brought our family closer together. It has taught us to ask for help and to lean on others, and to enjoy, really enjoy the little things. It has also shown us how incredible the human spirit can be.
When Andrew, asked us if he could do a fund raiser for us and the walk for Muscular Dystrophy we honestly didn't know what to say. We felt so humbled that he would give up his time to help raise funds to literally save our son's life.
We are so lucky to have such a great support system to help us navigate this terrible disease." - Melissa White
To show your support for Melissa and team Jacob, click the link below and make a donation and come on out Saturday, June 17, 2017 from 10:00 am - 3:00 pm at Lee Park (844 Memorial Drive) to walk for Jacob at the Walk for Muscular Dystrophy. Melissa is currently at 36% of her fundraising goal, let's help out!
https://m.akaraisin.com/13673/participant/3167364 #.WR33FDIEqbM.facebook
Please like and share this post to show your support for Jacob and his family.
Stay tuned tomorrow for more information on other ways you can make a positive impact.
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