Jules has cancer?

08/03/2026

IWD 2026. This Fire Horse is ready to bolt.

21/10/2025

POTENTIALLY NO TRIGGER WARNING. Unless talk is mental wellness and fashion illicit a negative response.

20/10/2025

20/10/2025

OBVIOUS TRIGGER WARNING. In for a penny, in for a pound. This is what happens behind the scenes.

20/10/2025

This will not be nice, but neither is life. I’m safe, but frankly unless you’re a fairy godmother and / or very well heeled philanthropist, I think I need to away from the internet for a bit.

02/09/2025

Cannot think of a more perfect way to end this chapter. Thank you

28/01/2025

FORTY ONE FOR FORTY ONE. Friday, 24th of January marked my 41st immunotherapy treatment.

The milestones are coming thick and fast. This week marks three years since repatriating to Australia. Where 2024 felt exciting and hopeful, this
January has had a disproportionate emotional weight. I was hospitalised on 7 January with an aggressive virus. It came on with such ferocity I had to call 000. (Huge gratitude to my paramedics for their care and persistence).

As I waited for the ambulance and struggled to catch my breath, I was swept back to the fear of the first days of the pandemic, the unseen virus that originated so close to where I lived in Hong Kong, and within weeks had upended countries, families and industry.

Five years on, the effects of the pandemic still ricochet. Fear itself is a kind of virus, but it infects people’s values and beliefs. It makes them suspicious, selfish and wary. Thus far, 2025 has felt cruel. I have always prided myself on my optimism and gratitude, but when so much feels out of one’s sphere of control, I suspect I feel the fear virus looking for chinks in my carefully cultivated positivity system to get in. Get in and get to replicating.

Physically, I am almost completely better, apart from a persistent cough. I have little appetite, and don’t sleep as well as I did.

I’m tired and it’s getting late, but if you could do me a favour, Dear Reader? Share some glimmers. I could use some antibodies against the Fear right now.

03/01/2025

THIS IS 40……… th treatment.

And it’s 7 days overdue. Instead of coming in on 27/12/24 for this auspicious occasion I was with loved ones, new and old, in places old and new.

2024 was the first year in over a decade that I wasn’t hospitalised for some mysterious pain, illness, procedure or treatment. It was a year of healing, exploring, experiencing, and most importantly, dreaming. Of a future for myself, and my daughter. I loved seeing the seasons change from my eyrie in the Dandenong Ranges, feeling my body change with them.

I find it so hard to write about this again. As you know, this project was never a long term plan, and yet, here we are in Year 5 of Living With it. 2024 has been a pleasure in living, and gentle forgetting.

I do genuinely intend to write more this year - I intend to do a hell of a lot of things this year, and in all the rest.